Grocery Store Communion

com·mun·ion
noun
1.
the sharing or exchanging of intimate thoughts and feelings, especially when the exchange is on a mental or spiritual level.

2.
the service of Christian worship at which bread and wine are consecrated and shared.

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The first trip Scott and I made to the grocery store after Hugh’s diagnosis of Type 1 Diabetes lasted two hours. We read every label on every item we thought we needed for Hugh. Where once we could breeze in and out of the grocery store in twenty minutes, now we carefully plan and scrutinize every purchase, making our trips last much longer. It’s just another thing that diabetes controls in our life. Another thing I didn’t think about before.

Our town is big enough to have more than one grocery store, but small enough that there is always someone I can chat with when I frequent mine. And since we Southerners love to cook and eat, our grocery stores become the places where we socialize, share recipes, and swap stories.

I make weekly trips to the store and can navigate the aisles with my eyes closed. I often direct people wandering the aisles to a specific item they are looking for. They should pay me, really, for all the time I have saved their staff in helping customers. I know when the fresh produce is put out (Monday mornings), when the best time of day for sushi is (11:00), and when to avoid the canned good aisle at all costs (whenever there is a 10 for $1 sale). I know to NEVER wear yard clothes or go sans make-up to the store, as that is always the time you run into your neighbor or your husband’s ex-girlfriend or your old boss. One time I ran into an acquaintance who is an exercise and healthy lifestyle enthusiast, and I threw the first healthy thing I saw into my cart just in case she was looking – broccoli and kale salad. I had a hard time explaining that one to Scott.

Our grocery store is also a place where we cannot hide the truth. Our carts speak for us. If you look under my broccoli and kale salad, you will see sugar free popsicles and no sugar added Nesquick. You will see a list of carefully planned out meals and juice boxes for lows and protein snacks. You will see someone desperately trying to control a disease that is never controllable. You will see me clawing my way into a reality that I still sometimes don’t want to admit is there.

I once stood in line behind a couple whose cart held one loaf of bread, a package of sliced cheese, three cans of pinto beans, two kool-aid packets, and a small jar of mayonnaise. I heard the woman tell the man, “This will have to do until our next paycheck. I hope it will last.”

Our carts don’t lie. There are carts with a bottle of wine and flowers. There are carts with food stamp approved items. There are carts with soft drinks and hot dogs and chips and cookies. There are carts with plenty. There are carts with nothing.

And there we all stand, in our neat little check-out rows, with all our items and all our lives out on display. There are days I fight the urge to turn to the woman next to me and say, “My son has Type 1 Diabetes. That’s why all this is in my cart. It’s really hard and some days I don’t know what I’m doing.”

I wonder what she would say to me. “My husband recently died from cancer. That’s why I don’t have much food in my cart. I just don’t eat as much now that he’s gone.”

Or “I just lost my job. I have to provide for my kids and I don’t know where it’s going to come from. All I can afford is in my cart”

Or “I’m getting off work early today. We are having a party for my daughter who graduated. She’s leaving for college soon and I’m really going to miss her. All that is in my cart is for her.”

As I was standing in line a few days before Easter, imagining what the tired mom beside me with two little boys would say if I asked what was in her cart, it hit me. This is our communion. This is our breaking of bread and sharing of wine. Right here in the grocery store check out line.

And I have to say, if Jesus were to come back tomorrow, I think he might pick a grocery store aisle to do it. As we are pushing our carts and our lives toward the frozen food section, we pass Jesus pushing his cart toward the ice cream. And he doesn’t even have to look in our carts to know who we are and what we are struggling with. He just smiles with eyes that already know our souls and he says, “Try the Rocky Road. It’s my favorite.”

In our lives where we tend to not notice others, where we rush in and out of grocery stores and each others lives like our very life depends on saving 5 minutes of time, let us slow down and practice communion whenever we get the chance. Let us notice the ones standing in line before us and behind us. Let us be kind. Let us love. Let us allow the mom with a crying toddler some grace. Let us have patience with the loud teenager. Let us smile at the check-out clerk and the one who bags our groceries.

Let us break the bread and share the wine with not just the ones we choose, but the ones who are standing in line with us. The ones who look different than us. The ones who are happy. The ones who are sad. The ones with plenty in their carts and the ones with nothing.

After all, we don’t know their struggles, but we can see what’s in their cart.

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The Blame Game

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Recently, we visited Hugh’s classroom for his birthday. While we were there, he had a short time to stand up in front of the class and share some things about himself. He had planned ahead, and brought his special bear Rufus, to show the class. He wanted to talk about diabetes and tell his friends a few things about Rufus (the diabetes bear from JDRF).

 

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Now, I have to tell you, Hugh loves an audience. He delights in being on stage and having all eyes focused on him. He comes alive when there is a crowd, so there was no hesitation as all his little classmates began asking him questions about diabetes. After the first few questions of “Do the shots hurt?” and “Why do you have to check your blood sugar?”, came the inevitable question we always know is coming . . . “How did you get diabetes?”

Hugh knows how to answer this question. We have discussed it many times. “Nobody knows how you get diabetes. Even doctors and scientists don’t know. My pancreas just quit working.” Then from the crowd of little people, someone shouts out “He ate too much sugar.” Hugh’s shoulders slump and he sighs. That’s when Mama jumps in.

“Do you all think that Hugh got diabetes because he ate too much sugar?”

Everyone answers in one loud chorus, “Yes”.

Ouch.

I know this shouldn’t bother me. It is a crowd of 7 year olds, for heavens sake. But as I started gently explaining that it was not because he ate too much sugar, it is just something that happens, I was mad. I was mad that this group of kids could blame Hugh and me for something we could not control. I was mad because I knew I was getting blamed by their parents at home. “Don’t eat that cupcake or you’re going to get diabetes like your friend Hugh.” I was mad because of all the education and awareness I try to spread, Type 1 Diabetes is still a mystery to so many.

But really I was mad because I still blame myself.

It’s silly, I know, to shoulder the blame of Hugh’s diabetes. I’m smart enough to understand what happened to Hugh’s body and that there was nothing we could do to prevent it. My mind knows the facts, my heart tugs in a different direction.

Call it old fashioned Southern guilt (we Southerners are so good at it), or a Mama’s longing for a different outcome for our children, or simply the way I’m hardwired, but there are days I can’t help it.

I ate a honeybun EVERY DAY when I was pregnant with Hugh. And not those small little honeybuns that come in packages of ten. I’m talking about convenience store honeybuns that you only buy on vacation. EVERY DAY. He was really sick when he was born because I developed an infection in labor. I couldn’t nurse him right away and he had to have formula in a bottle.

I let him eat all the icing he wanted off his 1st year birthday cupcakes. When he was two he had his first ICEE and he drank every last sip. We made once a week trips for ice cream . . . I could go on and on.

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Why do we mothers do this to ourselves? And more importantly, why do we do it to each other?

I’m ashamed to admit that when I hear of a child who has died from complications of T!D, I immediately start researching the story. I devour every article, like a hungry man who is getting his first meal in days, until I can find a reason to blame that child’s parents for his/her death. Yes, you read that right, I blame the parents.

Why do I do that? Because I can’t bear the thought of the same thing happening to Hugh. I just can’t. I find something that I can blame the parents for, so I can tell myself that that will never happen to my child.

I do the same thing to those parents that others do to me. I blame them for something they had no control over. I want my life and my story to be different, and if I do everything right and never make a mistake, then Hugh will live a long and healthy life. If I can find out what those parents did wrong, I can save my own child.

I know why you blame me for Hugh’s diabetes. I know why in the back of your mind you think, “I wont’ give my child that extra cookie because I don’t want them to have diabetes like Hugh.” I know why you watch me and try to find something that I did wrong. You want a list of what not to do, so that your child doesn’t end up like Hugh.

I get it. I do the same thing. We all know that Type 1 Diabetes is not caused by eating too much sugar, but there is still the blame.

Friends, can I ask you for a favor? Let’s STOP the blame game. Let’s stop looking at moms whose lives aren’t perfect and children aren’t perfect and quit blaming them for making mistakes to mess it all up. We all make mistakes. There is no playbook for this life. There is no instruction manual on how to save your child from diabetes or cancer or a car accident. Sure, there are good choices that we can make, but that won’t save us from everything.

Let’s STOP looking at people like they deserve bad things happening to them because of their choices. Let’s STOP blaming them for life just happening to them. And let’s STOP feeling like we deserve good things because we have done everything right. We don’t deserve any of this life – good or bad.

And while I’m asking for favors, my friends, can I ask for one more? The next time you hear someone talking about diabetes and that it is caused from eating too much sugar, or if you hear someone saying they knew someone who had diabetes who did not take care of themselves, or if you listen to a joke about how eating one more slice of cake will give you diabetes, can you gently correct them? Can you let them know the truth? Can you STOP the blame game?

I promise that if you work hard at not blaming me, I’ll work hard at not blaming myself.

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The Second Year

 

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Dear Friends,

We are still here. We have given approximately 3,650 shots to our boy. We have pricked his little fingers over 4,000 times. We have travelled to see an endocrinologist 12 times. We have survived a stomach bug, strep throat, and bronchitis. We have seen highs reach almost 400 and lows reach almost 40. We have been to the pharmacy for supplies and medication 83 times. We have lost 730 hours of sleep. And this is only year two.

Did I imagine all this when Hugh was first diagnosed two years ago? Of course not. I had no idea what would be required of him and us to simply keep him alive. Would I have wanted someone to tell me? Probably not.

Recently our little family took a vacation to the mountains. A chance to rest. A chance to be together. A chance to breathe. We wanted to hike to the highest point. We wanted to SEE what was before us and below us. We wanted to be in AWE.

But we couldn’t see. The fog was so dense that there was no view.

 

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We longed to catch a glimpse of the vastness below us and the beauty that we knew was surely there, if only the fog would lift and the sun would shine.

 

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They told us that the view would be amazing, but to be careful – it was also a little dangerous. They told us to hold our childrens’ hands tightly and to not get too close to the edge.

But a funny thing happens when you can’t see the vastness – it’s not scary at all. You walk right up to the edge and your heart is not even pounding. You’re not scared because you can’t see enough to be scared.

 

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You are not scared, but you are not in AWE either. You miss the beauty of it all.

You are forced to take a look at what you can see – the little things. The tiny icicles. The way the wind blows the ice in one direction. The fragile branch that can bear so much weight.

 

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Could I have told you the beauty of diabetes without knowing the fear? Would I have noticed the beauty in the little things if I could have seen the big picture?

Probably not.

Because there is fear in diabetes, but there is also beauty beyond words. There is a joy of knowing my son was dying, and is now alive. There is a love of life that only comes when you have been close to death and realize that each and every day is a chance to stand on a mountain top.

There is dancing.

 

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And there is loving.

 

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And there is God’s grace, washing over us again and again.

 

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We don’t know what diabetes holds for us next. I’m sure there will be battles we have yet to face. But we know there is beauty in it.

When we left the mountains, Scott and I made a promise to our kids. We would come back to this place. We would hike again to the highest point. We want to be a little scared of what we see before us, but we also want to be in awe.

With Love,

Sally

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